RDCRN Members' Landing Pages

The current RDCRN Members Landing Pages provide information and links to different RDCRN resources at different levels: network-wide, at the consortium level and at the protocol level. The links and functionality you can access from the RDCRN Members landing page is customized to your assigned roles in the RDCRN. Please expect the content, look and feel of this page to continue changing with some frequency as we bring new tools and features online.

NOTE: Do NOT bookmark the login page (URL starts with shib.rarediseasesnetwork…) - a bookmark on this page will not work. If you would like to save a bookmark then please do so with the Members' Landing Page https://members.rarediseasesnetwork.org. From there you will always be able to access all RDCRN resources provided by the DMCC.

Follow these tips when using the new system:

The RDCRN-wide Members' Landing Page (design as of Dec. 2020)

A. RDCRN Dashboard. On the top left of the RDCRN Members landing page you will see a clickable link to the Network Landing Page (RDCRN Dashboard) - you can always click here to get back to the main landing page.

B. Select another consortium. If you are affiliated with more than one consortium, use the dropdown menu on the far right of the blue bar below your name to choose another consortium. If you are affiliated with a single consortium, then a link to that consortium’s landing page will appear here. See below for an annotated screenshot of a sample consortium landing page.

C. Tool Garden. Browse and search the growing list of software tools and services available to RDCRN members. Use the Request a Tool button to submit ideas for new tools.

D. Member Profile, Support Tickets and Logout. The top right corner of the Member’s Landing Pages should always show your name and a logout button. Click your name to view and updates your Member Profile. If you have any open Service Desk tickets you will see a link appear that will allow you to display a list of your tickets. You are strongly encouraged to log out once you are done with the RDCRN resources to ensure security and confidentiality.

E. Members Directory and Quick Links. Here you can find links to RDCRN-wide resources such as a searchable full Member’s Directory and Quick Links to resources, training modules and a document sharing area. Click on the REDCap Training button to visit a REDCap training module. It includes videos provided by Vanderbilt University and quizzes for each section. This training is encouraged for all RDCRN members who will be interacting with the RDCRN REDCap database. You can expect this section to grow as tools are added to the portfolio.

F. Recent Activity. This section shows you convenient shortcuts to resources you used recently (e.g., in previous visits to the Members' Landing Pages).

G. DMCC Helpdesk. The “DMCC Helpdesk” widget lets you submit help requests to the DMCC. Use of this widget is strongly encouraged as it streamlines communication and allows the DMCC to track requests centrally and assign resources quickly.

H. Events, News and Announcements Section. Here you will see a news feed with network-wide information. Click on the panels for more details.

Consortium Landing Page (design as of Dec. 2020)

A. RDCRN Dashboard. On the top left of the RDCRN Members landing page you will see a clickable link to the Network Landing Page (RDCRN Dashboard) - you can always click here to get back to the main landing page. To the right of it you’ll see the name of the consortium whose landing page you’re visiting. The logo on the left hand panel also indicates the name of the consortium

B. Resources Panel. Easily access consortium-wide resources such as Complion training, a document sharing area and a searchable consortium Members Directory. Requests for corrections to the Members Directory should be submitted the DMCC, e.g., via the DMCC Helpdesk widget on the bottom right of the screen.

C. Protocols Panel. Find links to protocol-specific resources including the corresponding REDCap projects and training.