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https://ucdc.rarediseasesnetwork.org/patient-advocacy-groups

This page is driven from API imported from Django. There should not be a need to revise the layout/design off this page. Any updates within Django only show after a top of each hour site sync.

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  1. Alt name – I don’t believe this field is currently being used

  2. Website URL – this is the URL for the PAG and NOT the PAG URL on the consortium website

  3. Logo URL – this will be handled by the DMCC—submit a Help Desk ticket requesting assistance– this needs to be formatted as: https://static.rarediseasesnetwork.org + subfolder + filename

    image-20250108-152837.png

PAG priorities –

As UCDC currently only has one PAG, this information is just in case it is needed in the future.

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