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https://ucdc.rarediseasesnetwork.org/research-publications

This page is driven from API imported from Django. Any updates within Django only show after a top of each hour site sync.

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Importing New Publications

  • All existing Publication records were exported out of PubMed in CSV format and imported into the database with a Consortia association added

  • Periodically, new articles will need to be sourced from PubMed and uploaded to Django:

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  1. If no PubMed ID is displayed, then this publication should be added to Django (see below for adding a new publication and follow those steps – there is a way to import studies using a spreadsheet – if you need to do this, please reach out to the DMCC help desk for assistance.)

Formatting

  • IMPORTANT: Do not place any spaces or punctuation marks, such as a period, semicolon, colon, etc., at the end of the title and author field entries. The website is designed to automatically add spacing and punctuation in between the fields display. DO add a period at the end of the citation.

    • Authors: If present, remove periods and/or spaces between author initials and last names (i.e. use Miller BS and not Miller, B.S. or Miller, B. S.)

      • Repeat first author entry in the author section. If you leave the first author out of the author section, it will not show up on the website.

    • Citations: Do not include the author names, the article title OR the publication name in the citation field. The website is programmed to display this information separately. Please format citations as follows:  2019 Oct 8;9(1):253. doi: 10.1038/s41398-019-0588-1.

      • If you are adding a single publication and will not export a CSV from PubMed, please copy the citation that appears above the article title on PubMed following these steps:

        • Click on “Cite” on the right-hand side of the pubmed page

          image-20250108-150153.png

          Select the citation information and then copy and paste:

          image-20250108-150253.png

          In this example, the citation is “Neurol Neuroimmunol Neuroinflamm. 2024 May;11(3):e200241. doi: 10.1212/NXI.0000000000200241. Epub 2024 Apr 16. PMID: 38626361; PMCID: PMC11087030.” BUT - remember we need to remove the publication name as this is pulled into the site using the publication field. So the citation should be entered as: “2024 May;11(3):e200241. doi: 10.1212/NXI.0000000000200241. Epub 2024 Apr 16. PMID: 38626361; PMCID: PMC11087030.” in Django in the citation field.

      • Some publications are associated to more than one consortium, do not add the same publication more than once

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