https://ucdc.rarediseasesnetwork.org/research-publications
This page is driven from API imported from Django. Any updates within Django only show after a top of each hour site sync.
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Publications are associated to Consortia and Diseases
At minimum, associate each Publication to the consortium’s general disease
Importing New Publications
All existing Publication records were exported out of PubMed in CSV format and imported into the database with a Consortia association added
Periodically, new articles will need to be sourced from PubMed and uploaded to Django:
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If no PubMed ID is displayed, then this publication should be added to Django (see below for adding a new publication and follow those steps – there is a way to import studies using a spreadsheet – if you need to do this, please reach out to the DMCC help desk for assistance.)
Formatting
IMPORTANT: Do not place any spaces or punctuation marks, such as a period, semicolon, colon, etc., at the end of the title and author field entries. The website is designed to automatically add spacing and punctuation in between the fields display. DO add a period at the end of the citation.
Authors: If present, remove periods and/or spaces between author initials and last names (i.e. use Miller BS and not Miller, B.S. or Miller, B. S.)
Repeat first author entry in the author section. If you leave the first author out of the author section, it will not show up on the website.
Citations: Do not include the author names, the article title OR the publication name in the citation field. The website is programmed to display this information separately. Please format citations as follows: 2019 Oct 8;9(1):253. doi: 10.1038/s41398-019-0588-1.
If you are adding a single publication and will not export a CSV from PubMed, please copy the citation that appears above the article title on PubMed following these steps:
Click on “Cite” on the right-hand side of the pubmed page
Select the citation information and then copy and paste:
In this example, the citation is “Neurol Neuroimmunol Neuroinflamm. 2024 May;11(3):e200241. doi: 10.1212/NXI.0000000000200241. Epub 2024 Apr 16. PMID: 38626361; PMCID: PMC11087030.” BUT - remember we need to remove the publication name as this is pulled into the site using the publication field. So the citation should be entered as: “2024 May;11(3):e200241. doi: 10.1212/NXI.0000000000200241. Epub 2024 Apr 16. PMID: 38626361; PMCID: PMC11087030.” in Django in the citation field.
Some publications are associated to more than one consortium, do not add the same publication more than once
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Skip Associates Studies
Add title of study – no period at end
Add fist author – last name first name – example: Batshaw ML - make sure there is not a period at the end.
Authors – If present, remove periods and/or spaces between author initials and last names (i.e. use Miller BS and not Miller, B.S. or Miller, B. S.) - make sure there is not a period at the end.
Citation – Do not include the author names, the article title OR the publication name in the citation field. The website is programmed to display this information separately. Please format citations as follows: 2019 Oct 8;9(1):253. doi: 10.1038/s41398-019-0588-1. End this with a period.
Pub date year – add year of publication
Pub date month – add if provided (this will help with publication sort order)
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