RDCRN Policies and Procedures
The RDCRN Policies and Procedures is a document outlining the workings of the network. The document is maintained by the DMCC, but anyone within the network can request edits or additions.
The current document can be found in Box, is linked on the Members Landing Page, and is present on the RDCRN website.
Current document: https://box.rdcrn.org/s/7re4scwxz4086hu8q68dln6a0gyl7gzq
Policies and Procedures on RDCRN website: https://www.rarediseasesnetwork.org/dmcc/data-management-and-coordinating-center > Consortium Guidance and Tools