RDCRN Contact Registry

The RDCRN Contact Registry collects and maintains the contact information of people who want to receive information or learn about opportunities to participate in rare disease research. More information can be found on the public website.

Public Website: https://www.rarediseasesnetwork.org/registry

Project Proposal Form: https://redcap.link/6q3j191n

• You must be affiliated with RDCRN to complete the proposal form. If you are not affiliated with RDCRN, but are interested in completing a project with Registry participants, contact support@rdcrn.org.