RDCRN Protocol Database website

Owned by Karen Lapthorn
Last updated: May 31, 2023

The RDCRN Protocol Database website is accessible to all RDCRN members at https://protocols.rarediseasesnetwork.org/. This website contains basic information about all RDCRN Protocols. The information collected in this website is used for reporting as well as to display on the public website (https://www.rarediseasesnetwork.org) so it is critical to keep this information correct and up-to-date.

All RDCRN members can search, filter and view all Protocols. Clicking the Name will open a Details page displaying more information about the Protocol. Select Consortia members (typically the Consortium PM) will see an Edit button which will allow them to make changes to some fields. Anyone may use the Request Changes button to create a Support ticket.